Welcome

Heaven's Very Special Child

A meeting was held quite far from earth
"It's time again for another birth"
said the Angels to the Lord above,
"This special child will need much love"

His progress may seem very slow.
Accomplishments he may not show
And he'll require extra care
From the folks he meets way down there.

He may not run or laugh or play
His thoughts may seem quite far away
In many ways he won't adapt
And he'll be known as handicapped.

So lets be careful where he's sent
We want his life to be content
Please, Lord, find the parents who
Will do a special job for you.

They will realize right away
The leading role they're asked to play
But with this child sent from above
Comes strong faith and rich love.

And soon they'll know the privilege given
In caring for this gift from heaven.
Their precious child so meek and mild.
Is Heavens Very Special Child!
-Edna Massimilla

What’s Happening…

Michael Ellis, Addie’s dad, is running the Milwaukee’s Lakefront Marathon to raise awareness about RTS. “26.2 miles of feet pounding pavement is a challenge, but the finish line is clear and concrete. When you get there, you are done. Families touched by Rubinstein-Taybi Syndrome have an endless course ahead of them, with no clear marker for when things might ease up. If not for the support of other families, there might not be any easing up at all.” Good luck to Michael, we are all cheering for you.

http://www.firstgiving.com/26forrts

Matthew Lapp, has his own website, http://matthewshope.com. The Special Friends Foundation would like to thank Matthew and his families and friends for all the generous donations given to SFF. And the most exciting part is Matthew is becoming a wiz with his new communication device! Thank you to all for your amazing support!

Cincinnati Children’s, quarterly newsletter is out, www.cincinnatichildrens.org/ddbp, under Resources for Families – RTS News – July 2008 issue.

Heaven’s Very Special Child C 1956 2004 by Edna Massimilla, This is Our Life.

All rights reserved.. Words and artwork may not be sold, or reproduced without the written permission of author or agent.. Please send request to the following address….Heaven’s Very Special Child, Inc. Po Box 21, Hatboro, Pa. 19040.